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  • Cardiac Resources

    Posted by Deleted User on March 31, 2023 at 4:50 pm

    Hi everyone,

    I wanted to reach out and get a census of cardiac resources different hospitals utilize? Are there patient education websites you recommend? Any beneficial CHD pictures for new hires to help educate? Youtube videos?

    Thank you in advance.

    Kally Czapla replied 1 year, 3 months ago 3 Members · 2 Replies
  • 2 Replies
  • Claire Wilt

    Member
    May 19, 2023 at 12:21 pm

    Hi Maghan! When I started as a new graduate nurse I was introduced to an app called “Heartpedia” that was created by Cincinnati Children’s Hospital. The app contains 3D pictures of a variety of heart defects pre and post repair with descriptions and videos. It was useful for me to visualize the anatomy of cardiac patients and would be useful to help patient families visualize their child’s heart as well. They do not have every possible defect, but they have the following: ASD, AVSD, Co-Arc, Ebstein’s Anomaly, HLHS, Interrupted Aortic Arch, PDA, TAPVR, Tet, TGA, Truncus Arteriosus, VSD. I think this would be a valuable resource for new nurses and patients alike!

  • Kally Czapla

    Member
    May 15, 2025 at 3:30 pm

    I work in cardiac genetics and I really like the RASopathy.net website for information on Noonan Syndrome. I also like the Marfan Foundation website to help families find providers locally to them that have been approved as experts by the foundation.

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